Chiari Malformation and Syrinx As many of you know I have undergone double brain surgery back in 2015 and unfortunately had many complications to include, Hydrochephalis, inflammatory tissue that wrapped itself around my brain, Chemical Meningitis twice, a bleed on my brain, the patch inserted on my brain rejected and much more I also suffer […]
Hi Guys, I wanted to write this post to share with you all what I have been diagnosed with and the new journey I am now embarking. I started to feel unwell just before Christmas, I had terrible head rushes, pain in my neck that ran down my shoulders, very weak arms and started noticing […]
It with great sadness that I will have to postpone the Blake Beckford Competition, unfortunately I have received some devastating news on my health and I need to have imminent Brain Surgery, this means I shall be out of action for the next few months. This has been totally unexpected. Hoping my brain surgery goes […]
Some of you may have seen recently I have launched Ostomy Reviewer a rate and review website – where we as Ostomates have a voice and can review products and services we use to help others be able to make a choice on what product to use. Its the first and only website where we […]
Wow what a week! Over night I saw my feed & inbox go crazy with messages about my story I can’t believe I have been featured in so many publications across the UK and global I am truly overwhelmed and grateful for everyones support it has been fantastic! I am so glad that Ulcerative Colitis, […]
After battling a bowel disease for over a decade, Beckford set out to get into shape. His inspirational story is one of a kind Despite having the odds – and serious illness – against him, Blake Beckford managed to adapt and get himself into incredible shape. He’d always wanted […]
So over the last week I launched the #FightWithBlake campaign and I have to say I have been truly overwhelmed and incredibly grateful for the comments, emails, tweets, likes and new followers this week! So I wanted to say a big thank you to all of you! I have met some incredibly inspiring people this […]
I always get asked the question whats a colon? Whats your large bowel? Whats a bag? I was even asked do you wee and poo in the bag? I wanted to explain exactly what I have, what this bag is on my stomach and what a Stoma – Ileostomy – Ostomy is. I have an […]
Ulcerative Colitis (UC) is a disease where inflammation develops in the colon and the rectum (the large intestine). Its is also known as an Auto Immune Disease Ulcerative colitis is an autoimmune disease and in contrast to Crohn’s disease, which can affect areas of the gastrointestinal tract outside of the colon, ulcerative colitis usually involves […]
In 2013 I had a flare up that will live with me forever, all throughout the year I was in and out of hospital numerous times with uncontrollable blood loss and chronic fatigue where slowly my condition took over all aspects of my life! I have never felt so bad!! So in the October I […]
